Short video clips from patients/carers and medical professionals explaining what to expect
Further information to help you understand bladder cancer support options in more depth
Support Groups are a safe space where both men and women diagnosed with bladder cancer and their carers/families, can come together to share their feelings and experiences. The Zoom online meetings are held monthly, please register for a support group to receive the call details.
Cancer Council service: Health care professionals who provide free and confidential information and support, and offer referral pathways for emotional and practical assistance. The 13 11 20 team have bladder cancer expertise that will complement and broaden the support you are receiving from your medical team.
Rare Cancers Australia Service: Providing information, resources, and a support network no matter which stage of the journey you may be in.
Carer Gateway is an Australian Government program providing free services and support for carers. They work with a range of health and carer organisations across Australia to provide services to carers no matter where they live in Australia.
Carers Couch service: Behind every bladder cancer diagnosis is a carer. Carers Couch will listen, and work with you, to identify your needs as a carer, and help find the right support for you.
Cancer Council service: Talk to somebody who can relate to your experience. Emotional support to people affected by cancer through matched connections with a person who has recovered from a similar cancer experience.
While your team of medical professionals will provide you with the necessary medical support, you will likely need further help on your bladder cancer journey. These useful summary sheets will help answer questions you may have – eg: Are you looking for someone to talk to? Do you live in a rural area, and need practical support?
We know it’s difficult to navigate the specialist care you might need. To simplify it for you, we’ve listed the medical personnel you might meet along your journey and what each one is responsible for.